And here I thought my reign of terror from 2016 was over. How wrong I was.
On April 20th, 2017 I found out that I had a mass (aka: tumor for all purposes) after getting an MRI done and finding out that a particular level in my blood work was 172. Normal was 10-14. Now I am off testosterone until further notice and on a pill that makes me nothing but weak, sick to my stomach, and unable to cope appropriately. I can barely eat a full meal, I’m always tired, traveling two days ago was hell, I can’t do any normal household chores without having problems, I can’t really do anything. And that fucking sucks more than anything. Because I always am on the move and I’m always finishing up projects, chores, writing, taking care of my cats, and everything else in between. Now I can barely pick up a coffee cup without feeling like I’m going to pass out or vomit.
The thing about cancer is . . . yeah, it sneaks up on you. You never thought it would be you. And after the first few days, you laugh it off. You just shrug at all your friends and your boyfriend and are like ‘yeah it happened I’ll be fine. We’ll get it figured out when we go back in June for a blood test again.’ But then everything gets to be too much for you. Everything starts to blur together. And being off T makes it worse. You’re more agitated, angry, frustrated, upset, and irritable. I think that’s worse. Because I look and act a bitch, when really I’m not trying to be. I don’t mean to be annoyed with everything I see or hear or think. I don’t mean to snap. I don’t mean to slam things. I don’t mean to be this way. But everything is so terribly out of balance and out of whack right now. I can’t function properly.
Everything is heightened and anchored down all at once. It’s a horrible feeling, it’s a shitty place to be. You don’t want everyone else to feel just as bad as you do, so you’re trying to fake your emotions but fuck it’s hard. Add all of this medical stuff on top of everything else I’m dealing with. I feel like a ticking bomb. I’m going to explode at some point.
Yeah, that’s right. There’s like 10 other things piled on top of this whole tumor situation. Medicaid shutting me out because of “gender mismatch” that i know have to try and get the birth certificate and letters done while out of state. Isn’t that just so fucking great? After having top surgery and everything, too. The legal system still wants to fuck with me. So now I have to deal with that too? How is that fair? Not to mention trying to get back home in time for a bullshit disability hearing . . . that I shouldn’t even have to do. Again. When the legal and healthcare system doesn’t believe you’re really disabled. So you have to go to court. On top of the 5 other things you’re dealing with.
Also fuck my “family”. They don’t exist anymore. I have no “family” by blood. They’ve erased me completely. Having planted my “sister’s” graduation party on my birthday on purpose. Telling everyone my “sister” is their only child and she says she’s the only child herself. It’s disgusting. It’s sickening. They’re all fucked up. They don’t know what “family” is. They have a very distorted and skewed version of that word. I know who my true family is. I know who loves me for me and will be there for me and has been in the last two years. When your child (or rather, not anymore) tells you they have a tumor or cancer, your fucking answer as a mother shouldn’t be so bland, blaming and “K”. That’s revolting.
So tack that on to the list. Thank fuck I have a wonderful therapist that I’m working with to move forward from their disgusting , toxic , and unhealthy life. I think that was the straw breaker I needed to push away from them for good.
I just wish I could get breaks. I’m already sick 24/7 all the time and can barely do the minimum. Now it’s worse. With medical stacked on top of personal, stacked on top of legal. It’s like I’m looking at a pile of manila folders that just keep getting more paperwork added to them when I’ve barely finished the first two papers. More just keeps on coming.
It’s not a far cry to say that what I’m feeling is normal, but I wish I couldn’t. Because I know it bothers everyone around me. And I know it annoys people when I message them 50 times a day or post stupid shit on Facebook or just generally act like a fucking dick. I wish I could stop it, like a flip of the switch. Instead the switch stays down and things just keep feeling and getting worse.
I honestly wish I didn’t have to take my meds. I wouldn’t if I had the choice. Because I hate the way it makes me feel and I hate how it doesn’t let me do a fucking thing. But I want to get back on my T. I don’t even care about anything else. It could kill me for all I care. That’s how far I’ve sunken. But again, that’s normal. That’s what cancer feels like. That’s what it sounds like. And that’s what it feels like. I didn’t think I could reach lower than rock bottom with my depression alone. Boy was I fucking wrong.
I’m grateful for my family. For Alex, for Dev, for Bobby, for Beta, for Sarah, for Rhi, and for literally everyone else at the Q whom I love and have been there for me more than anyone else in the last two years. But I feel like . . . I’m always too much. There’s always something with me and I’ve only known a handful of these people for a year (come June) and in that year alone so much up and down has happened. So much of the same shit. So many problems. So many annoyances. And this always happens. And then I always lose everyone. Because I’m too much to handle. I love everyone so much, but I’m afraid I’m going to be too much for them.
I won’t lie. I wish I could just throw away the meds and say “oops oh well guess I’ll get worse who cares?” but I can’t. Because I know that’s bad. I know we have to fix this. I know I’ll never get better or be able to get back on T if I don’t. And I know that pisses people off when I say that and say I don’t care and would rather just . . . be gone. But I want people to understand that it’s going to be my normal way of thinking right now.
There’s so much going on. I’m overwhelmed. And the fact that I have to keep up with shit while I’m out of state is so stressful. I don’t WANT to sit here and make 40 phone calls a day to figure out all this legal bull. It’s draining. And I can’t focus for more than five minutes on what’s going on and I can’t handle more manila folders stacking up. But I can’t wait until June to get anything done.
I just . . . . more than anything want people to understand why I’m feeling so fucked up and low. I know I can’t make them, but I want them to try at least. Or see what I’m saying and be like “Oh! That makes sense. I’m sorry.”
I just want to shut my brain off. For at least a day. But I can’t even have that. The only peace of mind I get is when I’m sleeping. You don’t think when you’re sleeping. You don’t see all your folders.
That is, not until you come back to the office the next day. And then you look at your stack of folders that just keeps growing.
Then you think to yourself: “Is it really worth it?”